Younger Onset Dementia Part 1 (Research and Evidence Based Practice)

Cost: $200.62

NDIS information:

  • Support category - Improved Daily Living Skills
  • Support item - Training For Carers/Parents
  • Reference number - 15_038_0117_1_3

Who is this workshop for?

Parents and carers of people with Down syndrome aged 25+.

When and where

Course date: Friday 5th July 2019
Time: 10.30-2pm
Location: 18/71 Victoria Crescent, Abbotsford. 

Studies show that by the age of 40, almost all people with Down syndrome will have some changes in the brain associated with Alzheimer’s disease. Because these changes build up slowly, they may not have the symptoms of dementia at this age, but they may develop in the future. The genetic process that is thought to be responsible for Alzheimer’s is located on chromosome 21. Research suggests that people with Down syndrome therefore have a much higher chance of developing Alzheimer’s disease, and at a much earlier age, compared to the general population. Most studies report that around 50% of people with Down syndrome will develop Alzheimer’s disease by the age of 60 years, and that the average onset age is in the early to mid-50s.  

This workshop will look at the research and evidence that is being gathered on this topic and how this translates to caring and supporting an adult with Down syndrome within the community.

What will be covered?

  • A review of the current statistics and prevalence rates of dementia and Down syndrome
  • An overview of the signs stages and changing support needs for an individual with Down syndrome
  • Exploration of the interface between disability support  and Alzheimer’s Care
  • Review of the literature, resources and evidence based practice related to Down syndrome and Alzheimers
  • NDIS : How NDIS can support individuals diagnosed with Younger Onset Dementia or displaying signs of Dementia. 

Guest speakers: Prof Christine Bigby, Director Living with a disability Research Centre, LA Trobe University, Melbourne 
Facilitator: Debby Fruamano  Manager, Adult  Support,  Down Syndrome Victoria


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